THE STORY

Color PHor A Cure was founded by Josh & Lindsey Belt of Jennings, Louisiana. In January of 2013, their youngest son Joel, who was three at the time, was diagnosed with severe idiopathic pulmonary hypertension (PH). PH is a rare, life threatening lung disease. The disease causes high blood pressure in the pulmonary arteries. This makes it harder for the blood to flow through the lungs to pick up oxygen.  This causes potentially life-threatening consequences such as right heart failure.

Since there is NO CAUSE  found for why Joel has PH, that also means there is NO CURE.  Joel currently has an IV medication that is directly infused into his heart, he also takes a dozen other oral medications. While research has come incredibly far in the last 15 years or so, with 12 approved PH therapies and many more in the pipeline, none of these therapies are approved for use in children.

Watch this short video to see how the Belt family discovered Joel had PH!

LEARN MORE ABOUT JOEL'S JOURNEY WITH PH

Joel Belt was diagnosed with PH in January 2013!


WHY COLDonate TabOR PHOR A CURE?

During the summer of 2013, doctors told Josh and Lindsey that Joel only had 6 MONTHS TO ONE YEAR left to live. In response to the devastating news, Josh and Lindsey knew they couldn’t sit back and watch their son die. So with the support of hundreds of friends and family they hosted their first ever 5K called “Color PHor A Cure”. In absolute amazement, over 2,300 people from over 72 cities rallied behind the Belt family and participated in the run, along with an additional 300 volunteers. Color PHor A Cure 2013 raised over $130,000. The best part was 100% OF ALL THE PROCEEDS went to help raise awareness and research for PHA’s Dr. Robyn J. Barst Pediatric Research and Mentoring Fund for Pulmonary Hypertension. This is the only pediatric PH research fund in all of the USA.

Now, it’s time to do it again! Color PHor A Cure 2014, is just around the corner and it’s going to be bigger, better and even brighter! Joel and many other kids fighting PH need your help in raising funds to find a cure in their lifetime. Our goal is to raise $200,000 which would make Color PHor A Cure the largest PH 5K fundraiser in the world…so every dollar helps!



WANT TO LEARN MORE ABOUT PH?

PHA has commit more than $12 million to PH research!

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